Nothing really new with us lately. Mommy has been very, very busy with work and school and Carson and writing letters to Uncle Eric at basic training, so she has not had a moment to actually finish any posts she has started on here. (I love how as a parent you now refer to everyone, including yourself, in third person! I digress...) Of course, I say nothing is new, but with a growing boy there is always something new going on! Carson's new nickname is Roly-Poly.
He has finally learned how to roll both ways, so now he is putting that to use to move around from one place to another. He is definitely a hoot to watch! He's also fun to listen to, as he is babbling alot and cackling at things. He mostly loves to laugh at our feet when we wiggle them at him. Well, if he's in the right mood anything will make him laugh! One night I had to make kissy-faces all through supper to keep him entertained, because that was the only thing that was making him laugh and he kept staring at me to do something! He also has found a new sound to make that can only be described as a screech, and it sounds horrible! If you didn't know what it was, it would definitely make you run into the room to make sure nobody was torturing the poor baby! Last night he did it ALOT; it was cracking me up, but I told Dada we were both going to be deaf now.
As for his diet, they have lowered the amount of regular formula in his formula recipe, so now we use mostly Phenex-1, his special protein formula. He gets more phe from his food: rice cereal and now green beans, squash, carrots, or a mixture of them. I can't wait until we get his next levels back. I'm hoping we can give him more food and start some new kinds. This will be the last week of his 2-week trial on carrots, so I can't wait to see what's next! I bought some bananas and pears because I remember the nutritionist saying he could have those when we start fruits. I am already getting worried about people trying to get him to taste things. We are going to have to be stern with friends and family, which I think I can handle, I just don't know about Dada! I've already had some issues with a few people, but everyone has been told about his condition. I guess people we don't see or talk to directly often forget. We are really looking for tips on how to handle this issue properly. It is a big deal in our community because there are always occasions that involve food. For example, Marty's Great-Grandma Stanley's 90th birthday party.
It was a pot-luck dinner and cake. I find myself now always looking at foods, even in the grocery store, to determine if it's something Carson can eat. I'm getting myself prepared! If anybody out there has any ideas, I'd love to hear them! Marty and I have had a lot of adventures in our life together, and I just see this as another adventure to come. I am enjoying every minute I can of Carson's life, when I'm with him, or when I'm preparing things for him.
Next venture...taking Carson on vacation. For now, it is ok because we still do formula and baby food. Still, looking for any tips here too. I have actually found some good travel tips online somewhere, I just don't remember where I found them! I will be looking again, and looking forward to any comments here. In April, presumably, we will be traveling to San Antonio for my brother's Air Force basic training graduation. This will be Carson's first trip! We are planning to fly and stay in a hotel for a couple of days and visit family while we are out there. Then in May, lookout, we are going on a 10-DAY trip out west! YIKES!!! We will have lots of family and friends there to help. We are traveling with our usual travel group from New Temple Baptist Church, including our travel agent, her husband, their daughter, son-in-law and now 3 granddaughters! The twins have a new little sister that we have dubbed Carson's new girlfriend! She is a couple of months older than him, which is closer than any of my friends' little girls. Also, Marty's parents, his grandmother, and now my Nanny is coming with us for her first time with our group. So Carson will have Mommy, Daddy, Nana, Paw-Paw, Grandma Great AND Nanny! How blessed are we? Praise the Lord!
I came across your blog while looking up new information for my daughter who has PKU also. She is now 4 years old and has done wonderfully on her diet, she is at the age now that she can tell people no thank you if they offer her food and lets them know why she can't have it. I few words about traveling with the little one. If going by air have a letter stating you need to carry liquid on plane and why, I had one written from her hospital and carry all times. I usally also carry the formula on the plane with me just in case!!! And I always bring more than I need because once I ran short and there was panic. I was just like you always looking ahead and wondering what I would do when we were at family/food functions, it isn't as bad as I thought. I always have a little treat with me for the just in case there is nothing there but as Carson gets older he will be allowed more foods that is just like us. We do exchanges here and she is on 8 1/2 now and some days it is hard to get to that amount. It seems so daunting sometimes but I promise you it does get easier the longer you are into it. Best of luck. Carson is just so cute.
ReplyDeleteSiobhan