Tuesday, December 3, 2013

National PKU Awareness Day

There are many reasons why I have abandoned my blog efforts for the past few months.  I cannot get into those in this post, but just know that I am trying to jump back on this wagon now!  Today is too important not to post.  Today is National PKU Awareness Day.  Ever since Carson was diagnosed it has been my mission in life to raise awareness and help people in our lives understand what it is all about.  If you love my child, you need to understand his challenges, and of course how special he is.

Carson is still doing great with his diet.  He is finally showing more interest in other foods (SALAD!!!), but he also is becoming curious about foods he cannot eat, thanks to his grabby little sister!  lol  He sees her eating what I eat and he wonders what we are eating and why he is not getting that.  I am trying my best to explain it to him and use each opportunity as a teachable moment.  He gets a kick out of saying "PKU" for some reason, I guess because he loves letters so much.  I am so proud of how far he has come, and it is so nice to be able to start to tell him and help him understand what he eats and does not eat.  This is quite an adventure!

For more information, please visit older posts on my blog by clicking on any of the PKU related topics in the list on the right-hand side of this blog and read about our experiences with PKU.  I will try my best to get back here and post some more updates and share what has been going on in our crazy, busy lives.  Happy PKU Awareness Day, friends!